National Secretary of Hemophilia Foundation of Nigeria, Mr Victor Adegbesan said most Nigerian doctors are ignorance of the existence of Hemophilia condition in the country.
According to him, some of the doctors always denied that the such bleeding condition exist in the country.
It could be recalled that Hemophilia is an inherited condition that affects the blood’s ability to clot and affect mostly men.
Mr Victor who disclosed this at a Media forum held by the foundation in Kaduna said they have hemophilia patients to show as prove that the blood disorder does exist in the country.
“It has not being easy to get hemophilia patients because some doctors in the country do not even know about Haemophilia. They keep denying that it does exist. But we have patients to show that Hemophilia does exist and people living with bleeding disorder are on the increase.
“Recently at a meeting in Kano we discovered few patients in Kano, we also discovered 2 more patients in Kaduna. In fact, within few years we discovered about 65 patients and the number is still increasing,” he said.
According to him, hemophilia treatment is quite expensive and so the foundation is saddled with the responsibility of providing the International units or drugs to patients registered with them.
The National Secretary further pointed out that the aimed of the foundation was to ensure that all patients of bleeding disorder in Nigeria have a normal life.
“We have treatment centre or units in virtually all teaching hospitals in the country such as Aminu Kano, ABU Teaching Hospital, Lagos teaching hospital among others,” he said.
He said part of the challenges faced by the foundation, include lack of awareness among the citizenry, low level of awareness among healthcare providers and lack of support on government side,” he said.
In her remarks, Africa Media Foundation of Nigeria AMDF Programme Officer, Sekyen Dadik said the aimed of the forum was to sensitize media practitioners on how to report hemophilia issues.
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